On FEBRUARY 27TH 2011 my life changed forever, this is my story of recovering from a stroke at the age of 21. 1 in 5 people will have a stroke in their lifetime... I hope this blog helps raise awareness of strokes in younger people or helps another stroke survivor realise it can be OK. In the UK 150, 000 people will have a stroke every year - 25% of these are under retirement age. approximately 700 per year are CHILDREN. Strokes do not discriminate against age so remember to act FAST (Has their face drooped on one side? Can they raise both arms and keep them there? is the speech slurred? time to call an ambulance!!!) hit counter added 27/12/11 hit counter
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Posts Tagged: the stroke association

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At Easter I received a phone call from Merry at the stroke association to say that they had been allocated some tickets to the Queens Diamond Jubilee concert and wanted to know if I would like to go. I said yes straight away as I love music and mostly because I knew Jessie J was playing but I didn’t really know how lucky I was to have a pair of tickets. I wanted to take my mum as she had applied for tickets in the ballot but were unsuccessful and i thought she deserved it as she’s been pretty epic for the last 15 months and well the rest of my 22years. I had also found out that Joanie and Sarah Scott were going and we have all been talking for a while and been keen to meet. Sarah had a stroke when she was 18 and although our strokes affected us very differently we have very similar attitudes towards what’s happened to us (look her up on YouTube!)

We were very lucky as not only did we get tickets to the concert but also to the picnic in the palace gardens.

I’ll give you a little run through of the day.

The first treat of the day was a hair cut and style and the Toni & Guy concept store in Sloane Square. This was complimentary from the stroke association as Toni of Toni and Guy has previously had a stroke and wanted to give something back to the charity. We met Sarah and Joanie there which was just lovely and we had our hair glammed. As we were in Sloane Square I of course pretended I was in Made in Chelsea. I opted for a messy doughnut up do as it is something I can’t do by myself with one hand. I loved it.

Afterwards we grabbed a quick lunch and made our way to Buckingham Palace to join the queues for the picnic. The gates opened at about 3pm and we had to go through heaps of security before reaching the front of the palace. It felt very surreal being stood behind the gate that I’ve previously stood on the otherside of being a tourist. We then walked through a courtyard to collect our picnic baskets which there were piles and piles of before walking through three rooms of Buckingham palace before getting into the garden. The three rooms we walked through we’re absolutely stunning and the carpets were incredible, so soft and bouncy I really just wanted to throw myself on the floor and stay there for a while. We were some of the first into the garden where they had a steel drum band playing loads of classics. We grabbed some seats and collected our complimentary champagne which me and Sarah both knocked over. Both really were my fault and I’d like to call this the Cobb curse. The picnic was delicious although I wasn’t too keen on the cold soup…

Mum and Joanie fangirl’d over some of the royals greeting people in the garden whilst me and Sarah ate icecream in the rain. I’m sure it would have been different if it was prince Harry as I now have a mega crush on him, but they were following sophie of Wessex and prince Edward, whoever they are

At about 5pm we we’re asked to make our way to the concert area, our seats were right I’m front of the royal box (perfect perving spot for Harry) and David Walliams was a couple of rows behind us! I’m sure most of you saw it on TV so I won’t go into it too much, my mum loved Robbie Williams and Jessie J was obviously my highlight, I spotted her before she was even on stage I’m such a geek! The common wealth band gave me goosebumps singing ‘sing’ and Elton John singing ‘Your Song’ was incredible as its one of my all time daves and apparently mum used to sing it to me when I was a baby so that was nice and sentimental!

It was such an incredible night and I feel very privelidged to have had this once in a lifetime experience and to have seen so many incredible artists that I never imagined I would get a chance too! Cheryl cole, I could have lived without.

Afterwards I was very tired and there were no taxi’s so we made one of those men on bikes with carriages take us back to our hotel. His legs must be made of steel!!

Absolutely fabulous day, Thank you Elizabeth & The Stroke Association

Buckingham Palace Picnic & Concert, Diamond Jubilee

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Around two weeks ago Kate from The Stroke Association approached me about a project they were developing for Groupon as part of Action on Stroke month. She wanted to know if I would write a few blog posts for them to show that there is life after stroke. I of course said yes, these are the results.

Part 1

Part 2

Part 3

Someone on different strokes recommended people start filming the techniques the use for daily tasks, so heres my technique for getting in and out of the bath, hope it helps someone develop their own technique. PLEASE DO NOT PUT YOUR SAFETY OR HEALTH AT RISK BY TRYING TO COPY THIS, I believe you will know your abilities and it took me months of practising before I could do this with water, so practice first fully clothed, with any supports/shoes you need on and someone close by to help if you need it and when you feel confident, lose the shoes/support, then eventually when you master that try it without anyone in the room, and you will know when you are ready to take a bath. good luck! 

REMEMBER I AM NOT A PHYSIO, JUST A STROKE SURVIVOR SHARING MY EXPERIENCE & TECHNIQUES 

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“In a heartfelt speech, a stroke victim of just 22 explained her attack, and thanked stars for attending in support of the charity. Those included reality stars like Gemma Wright, Lydia and Arg from TOWIE, and Cheska Hull from MiC, who were almost moved to tears by the speech, as well as the show of gratitude from Nike Ede himself. We were actually moved by Nick’s speech – if we weren’t wearing waterproof mascara it would have been messy.” taken from Live like a VIP

I’m not really sure where to start with this. I guess I’ll try and be as chronological as possible. 

Firstly I’ll let you know a little bit about Nick. He is the creative director of PR EdenCanCan and is also a celebrity stylist. His mum died of a stroke and so the stroke association are a charity very close to his heart. He has been putting on ‘A Night with Nick’ for the last 15 years and helping to raise awareness and money. His work has clearly been great as he is influencing people who influence others. He is such a friendly and fabulous man and made me feel really comfortable in an atmosphere that was new to me.

OK so me and Rosie stayed in bed pretty much all day to make sure we could make the most of the evening (or because we are the laziest girls in the world) When we started to get ready I started having a ‘mare. I tried to curl my hair but I didn’t like how it was falling and I got really upset. I know it sounds so petty and insignificant but curling my hair easily and so it looks good is one of the things I miss the most. After having my second hair wash of the day I decided to leave my hair straight and get ready. At half 5 we were ready and waiting for our car to the event. We arrived at the Swarovski Crystalized Lounge at about half 6 where we met Kate from the stroke association, she took us upstairs to where the party was and we had our eyes vajazzled hahaha.

 At about half 8 the guests started to arrive and I started freaking out, How was I going to stand infront of all these people and do my speech? I was mostly worried about the increase in tone in my arm that I knew was going to happen because of my nerves (it happens infront of boys I like so it was bound to happen infront of a room of people I watch on TV ) To take my mind off it Kate started introducing me and Rosie to various guests. We saw Cheska from Made in Chelsea walk in and we started to get excited. We are OBSESSED with the show and had hoped some of them would be there. We carried on talking to Kate and then out of the corner of my eye I spotted Millie in the corner with Cheska. She is our absolute fave and we asked Kate to see if they would speak to us. They asked us to go over and they were both amazingly nice. I told them how nervous I was and they said they get nervous too. Millie told me to imagine everyone in their underwear and Cheska said “we’re your friends now but just imagine everyone in here are your best friends and you’re just talking to them” They really helped to calm me down. I think Millie left before my speech but afterwards Cheska came up to me and said I did amazingly and she’s tweeted me since saying….

which I thought was really sweet. Made in Chelsea really doesn’t do her justice on how beautiful she is or how lovely both of the girls are. Millie is an absolute stunner as expected.

We then saw Arg, Lydia and Gemma from TOWIE roaming around. I was introduced to Gemma as she was introducing me on stage so that also helped calm my nerves temporarily. Then Arg sang a few songs and before I knew it Gemma was on stage introducing me. I was so scared again and clumsily climbed up on stage. I started my speech so nervously and as I looked around the room I became really overwhelmed and could feel myself getting upset. I was baring my soul to these complete strangers who were all looking at me and as I said “My parents were told the first 48 hours were crucial and I may never walk again” I burst into tears. I was shocked, I havn’t cried about this very much recently and I really hadn’t anticipated getting upset on such an exciting night. I managed to continue with a slightly high pitched voice (sorry!) and ended up laughing at myself and crying again. The whole time I could hear everyone,  especially Gemma, saying how incredible I was and how great I was doing. Gemma even said something along the lines of ‘how brilliant that you’re standing here today, stunning’ I carried on and finished my speech before presenting a ‘Lifetime achievement award’ to Nick who then also cried and made me feel less silly. 

Me and Nick crying

When I came off stage Lydia, Arg and Gemma we’re being so supportive and I found myself in an embrace with Arg whilst he told me how nervous he was and I finished crying into his arms. Lydia, like Cheska, is way more beautiful in real life than on the show. I honestly can’t believe how nice they were to me and how much better they made me feel. When my eyelash fell off from the tears Arg even said ‘Don’t worry you can spread the other one out’ not really sure thats how it works…

Trying to get to the toilet I couldnt take more than one step without someone saying how amazing I was or how brilliant my speech was. It was so incredible and I finally kind of accepted that how I have dealt with this is pretty amazing and that I have been through SO much this year and it really was amazing that I could even stand in front of these people at all. Most people told me they didn’t know it happened to people my age so i’m glad by me being there I not only raised awareness about strokes but also strokes in young people.

After sorting out my make up I was introduced to Denise Welch who is basically now my second mother. She missed my speech but was so ridiculously nice and I remembered her son is lead singer from The Big Sleep  (more recently the slow down but now something else I forget) and i’ve met him a couple of times through Little Comets so I mentioned that to her. She asked me a little about what had happened to me and said she must get my number so that when she is next in Brighton we can meet up. At the after party she gave me her number and said I must text her in the morning so that she could take me to a pantomime somewhere near Brighton. She has text me since saying she hopes to see me soon so hopefully that could be a nice christmassy trip out.

I had noticed that a model called Jay from Dirty Sexy Things was at the party. Again Kate got him to come over and he told me about his mums best friend who had a stroke when she was 26 and said that I had made him a bit teary with my speech. We were chatting for a while and he said that he would get my number so he could take me out in Brighton. Later on he asked for my number but not in a million years did I think he would text me. He told me we were going to dance and spun me around whilst I laughed and said ‘I can’t dance’ ‘yes you can’ was his reply so I did, badly haha. He seems like a genuine sweetheart and I hope he keeps in touch and takes me out!!! Plus he’s a megababe.

You’ll be pleased to know he text me to say it was lovely to meet me and that his management are sorting a proper night out so fingers crossed. I’m just hoping him and Denise don’t organise something wgile i’m home for christmas or I will be getting the train down to Brighton for it (Just warning you mum!). You never know I might be the next loose women.

Not too long after my speech a lady called Sylvie came over to me and said “theres a boy over there who thinks you are absolutely amazing, he lost his leg and arm in Afghanistan and he just thinks you are so brave” I was so shocked and confused, how could he think I was brave? He was the brave one. I went over to talk to him and i’m pretty sure we just stood there saying “you’re the brave one” “are you kidding? you’re brave”. Of everyone I met that night I know that Ben will be the person I remember forever. Both him and his fiance Sophie we’re so down to earth and had the perfect personalities. I felt really bad because as I was talking to him I could hear my name being shouted out for the raffle so I scurried off and couldn’t find them again. Luckily they were at the after party so I asked them to come and sit with us, they told me a little bit about Ben and his recovery. We talked about how we both lost our appetite before both saying we were hungry which was pretty funny and they both told me to keep going because even three and a half years later he is still recovering. Its amazing how even though the situations are so different we could really relate to each other. I can honestly say that looking at him I wouldn’t have known anything was different about him and they both said when I stood on stage they didnt realise what I was doing there. I genuinely wish them both the best for their future and I hope they have a beautiful wedding, they really deserve it. 

I also met Sue who was the stroke survivor who spoke at the event last year who told me she cried when she did the speech and we both talked about our recoveries and how annoying splints are! She asked to stay in touch so I have e-mailed her and waiting to hear back.

I had the most incredible night and as I said in my speeh want to thank Nick for letting me be there and to all the guests for being so fantastic to me and of course to Kate and Meri for being so lovely and making sure we were allright throughout the night. 

Rosie filmed the speech for me so I will try and upload it asap. 

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Two of my best friends Amy and Nicola and my cousin Tom ran the Nike half marathon on September 25th. They all decided to run to help raise money for The Stroke association who have been  great mental and financial support for me over the last 7 months. Especially Anne who has kept in regular contact with me, helping me with grants for equipment and allowing me to share my story at communication support groups. There are no words to explain the support she has given both me and my Mum. I hope this effort from my friends helps to show my appreciation. 

In a way I feel kind of guilty that all of the money went towards The Stroke Association as I have also recieved fantastic support from Different Strokes. But hey, I’m not even 7 months post-stroke yet so I’m sure they’ll be plenty more half marathons and fundraising events, who knows, maybe one day I might even run one. 

The day was absolutely lovely. The atmosphere was incredible and we stood by the start/finish line to try and spot them all in their first and final moments. Unfortunately we didnt see them running out and when it reached the 2hr15 mark we had kind of given up hope of seeing them finish and then they were there, Nicola and Amy first, hand in hand across the finish line after a few screeches from me an my mum and close behind was Tom. None of them looked out of breath or like they were struggling which was such a relief and they completed it at around the 2hr20 mark

I’m not sure how much they raised in total but I think it was the best part of £1000 with on and offline donations so thankyou so much guys. You could never know how much this means to me. thats to the 3 runners and everyone who sponsored them

For any last minute sponsorships please visit 

http://www.justgiving.com/Tom-Cobb

http://www.justgiving.com/amy-chandler0

http://www.justgiving.com/nicola-rick

Oh and just to be clear if you are my friend and you are not sponsoring them because they didnt sponsor you please re-evaluate the situation and donate anything even as little as £1. This isn’t about you. It’s about the 150,000+ stroke survivors a year and a charity that needs your help to prevent them.

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I should have blogged about this on thursday but I’ve been way busy! I managed ti get my wrist to straighten from being bent down for the first time since the stroke! I was very excited and still am but I worrried that it was more to do with the tone in my arm than actual movement as at the moment I can only do it by holding my arm still with my right arm (if i don’t do this my whole arm moves before the wrist straigtens) I’m going to ask my physio about it on monday so I will let you know. When I showed my OT she literally squeeled so i’m guessing its a good sign anyway and hopefully with a bit of practice i’ll be able to move the wrist without holding my arm at the same time! 

Thats about as exciting as it gets progress wise. I’m finding walking much better with the walking frame, I can tell my leftside has to do more work and it makes me walk much more evenly, If I do a distance with the frame my tone stays much lower than if I do the same distance with a stick so recovery seems to be on the (slow road) upwards again. 

On that happy note I would just like to clarify - I did not start this blog to save the ‘chore’ of telling all of my friends how I am doing. It was for me to keep track of my recovery and to help raise awareness that strokes happen to younger people too as well as sharing my story of recovery at the age of 21. I appreciate everyone who has taken the time to read this blog and hope you continue to find it interesting but if you want to ask me personally how I am then please do, I do not feel ‘bugged’ and it is not a “chore” I am happy to talk about it with my friends and if I’m not feeling up to the conversation I will tell you. I know that my recovery can be hard to understand (even I have to ask questions about it) so if theres something you want to know just ask.

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I recieved a letter from the stroke association today to let me know of the services they provide. It was nice to be acknowledged by a charity set up to help those who have suffered from a stroke. I have already had some great experiences with The Stroke Association including hospital visits, financial help (grant) for taxi’s and e-mail support & encouragement. the work this charity does has really helped me understand and handle what has happened to me.  

Alot of support is aimed towards older stroke sufferers and whilst there are alternative stroke charities such as Different Strokes I have not found them as helpful as The Stroke Association. Perhaps one day they will look towards having areas of the charity aimed specifically to help younger victims. There have been many things I have felt I needed help with throughout my recovery including, returning to university, emotions, claiming benefits, and  catching a bus in a wheelchair. Maybe one day this will be something I can help others with. But in the mean time please sponsor my friends/family who are taking part in Nikes Run to the Beat half marathon in September to help The Stroke association continue giving the incredible support they gave to me and my family to others who need it. Thankyou

http://www.justgiving.com/gcobb

http://www.justgiving.com/Tom-Cobb

http://www.justgiving.com/kathryn-shutler

There are 3 others running this - will post their links asap.