Life//Adventures

Month

April 2011

4 posts

Breaking the rules

I’ve been home for just over 2 weeks now and I am absolutely loving it. My walking is getting better all of the time the only thing thats slacking is my arm. since I left hospital on april 8th I have only had one proper physio session. It’s been quite frustrating because I feel that I’m not progressing as quick as I could be but my physiotherapist is lovely and when she assessed my arm she said I have 75% of the possible arm movements there it’s just that they are too weak to be functional at the moment, but at least iyts a positive start. she went over the exercises I had been given and adapted them and gave me a few more that I can do by myself.  Another thing I’ve found very frustrating is that food tastes really wierd, Its almost as if things have no taste, unless  it’s garlic, spice or peanuts. Apparently this is quite normal post-stroke and is something that will fix itself but it’s very frustrating going through the effort of making food with one arm and eat it to find that its tasteless.

I have had a few experiences in the last 2 weeks that I see as big achievements towards my recovery but also go against the “only walk around the house rule” the occupational therapists gave me when i left hospital the first was going to the cinema to see scream4. my housemate drove us there but we couldnt fit the wheelchair in the car so she dropped me off near the door and one of my friends walked with me to get our tickets and then through to the screen, this is the furthest I have walked since the stroke & it was nice to push my legs a bit further and learn that they don’t fatigue as quickly as i had thought although my leg was a bit achy the morning after, it certainly didn’t do me any harm. 

the second was going to my first po-stroke standing gig to see the band metronomy. my manager & friend from work planned this night out & I was determined to go because for one I love metronomy, secondly I missed him & the girls who were going and thirdly I needed to get some practice in for glastonbury. being in a wheelchair at a standing gig obviously gives you a very poor view mostly of peoples bums & backs so I gave standing ago. It was quite scary at first standing surrounded by so many people but with all my friends around me acting as my personal body guards I was able to stand for the majority of the set, even having a bit of a dance around before my leg fatigued. I had such a good night and was pleased that I could still go to a gig (something I did befoore on a regular basis) and feel quite comfortable.

the other thing I did was not necesarily a success physicallly but I went back to my internship at juice 107.2 to see how I got on and although I managed to take the two flights of stairs there I was more pleased about being able to get back into something that was a huge part of my routine.

Apr 24, 2011
Home Sweet Sweet home.

less than  6 weeks since I collapsed on the street I was discharged back to my student house in Brighton. I was so happy to be home but secretly worried that everything would hit me and it soon did, on my first day back I went in the shower which although the occupational therapist had added rails to help me, it still wasn’t quite right and I ended up soaking the bathroom and dropping my dry clothes on the wet floor thanks to the lack of function in my left arm. I ended up letting myself get upset over how difficult I found it but after a few minutes to let the emotions out, i picked myself back up again. Luckily my dad was visiting on saturday so he adjusted everything and the next time I had a shower it was easy as pie and I had no idea why i’d let it all get to me over something so insignificant. since being at home I’ve been walking around the house, upstairs and downstairs with it getting easier everytime I still have confidence in my recovery and know that i need to keep positive and not let miner inconvieniences get to me and remember- its only temporary.

Apr 11, 20111 note
torture.

the occupational therapists took me on a ‘home visit’ a couple of days ago to make sure I could get around my house. it was literal like torture making me go there and then come back to hospital for one day before being actually allowed home. Before the visit they made a massive fuss about two steps in between my bedroom and the bathroom, which I nailedas soon as I got to them, lserously no idea what they were worried about, if a stroke cant stop me two steps can’t. the only thing I did struggle with was the concrete steps going up to my front door, the wall on the right handside is really low so when using it as a bannister I lost my balance but I saved myself and managed to make it into the house (which has never been cleaner) so I walked through to the lounge where they made me sit on the sofa and make sure I could get back up, i seriously wanted to pretend I was stuck so they would leave me there forever but I’m not sure if they can take a joke about things like that so decided against it. I then had to walk up the stairs and into my bedroom before checking I could get in and out of the shower, all of which I completed with ease. 

Once at home I will be visited by a community rehabilitation team who will continue my physiotherapy and help keep my recovery going. I’m so excited about going home now that every dragging minute feels like an hour. Physio is still going really well though! my walking has improved a little bit and although I still need a walking stick I’m much more confident on my feet.I hhave now started physio on my arm - mostly weightbearing exercises but it should help kickstart a few of the muscles that are being lazy! I also found that I can do much more with my arm than I initially thought, which is amazing. I’ve also been given a home exercise programme to start to make sure i’ve still got things to be practicing untill the community rehab kicks in!

COME ON FRIDAY, HURRY UP!

Apr 7, 2011
3 sleeps

Theres only 3 sleeps left now until I get to move back into my house and i’m pretty sure this last week couldn’t be going any slower if it wanted too! On the plus side my walkings coming on nicely, I don’t get as tired as quickly and one of  the physios Zoe thinks I might be walking independently by friday, at the moment they have recommended supervision which basically just means I need someone with me when I do walk incase I do fall or anything. I have physio everyday this week so hopefully I can be independent by friday. it’s quite exciting anyway but I just can’t wait to get home now, its so close  and yet not. I don’t really have anything interesting to say at the minute so i’ll keep this post short.

Apr 5, 2011
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